ALS Awareness Month Activities

May was ALS Awareness Month, and this year, the OPALS 4 ALS community showed up in a big way. Our goal throughout the month wasn't just to talk about the disease, but to truly illuminate what it means for the families fighting it—and most importantly, how we can all step up to help.

If you followed along on our Facebook page, you know we covered a lot of ground. Here is a look back at how we spent the month, and how you helped us turn awareness into tangible support.

A Month of Education and Action

Throughout May, we focused our message on three distinct phases to help our broader community understand the reality of ALS and exactly where their support goes.


Confronting the Statistics

We kicked off the month by sharing the hard numbers. Every 90 minutes, someone in the U.S. is diagnosed with ALS, and every 90 minutes, someone passes away from it. By sharing these statistics, our goal was to highlight the sheer urgency of our mission. The numbers are daunting, but they are exactly why we refuse to stand on the sidelines.



Raising True Awareness

Numbers only tell half the story. In the middle of the month, we shifted our focus to the human side of ALS. We shared insights into the daily challenges faced by patients and their caregivers. True awareness isn't just knowing the disease exists; it's understanding the massive physical, emotional, and financial toll it takes on a family, and recognizing the incredible resilience of those fighting it.

The 'Sponsor a Service' Drive

We wrapped up ALS Awareness Month by giving our community a direct way to make an immediate impact. We launched our Sponsor a Service drive, breaking down exactly what your donations provide. Rather than giving to a general fund, this drive allowed supporters to fund specific wellbeing services.

The Fight Doesn't End in May

We are incredibly grateful to everyone who shared our posts, engaged with our statistics, and contributed to the Sponsor a Service drive. Your generosity directly translates into easier days and better care for the families we serve.

However, the reality of ALS is that it doesn't observe a calendar. While ALS Awareness Month is officially behind us, the daily fight for people living with ALS continues.

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Amy's Story Featured by The ALS Association

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A Sea of Blue: The Meaning and Making of the I AM ALS Flag Display