ALS (Amyotrophic Lateral Sclerosis)—also known as Lou Gehrig’s disease—is a progressive, fatal neurodegenerative disease that attacks the nerve cells responsible for controlling voluntary muscle movement.

Life expectancy following diagnosis is typically two to five years. There is currently no cure for ALS, and the fatality rate is nearly 100%.

In Wisconsin alone, an estimated 460–490 people are living with ALS at any given time, each facing the physical, emotional, and practical challenges of a progressive and incurable disease. Behind this number are individuals, families, and caregivers navigating daily life changes, loss of independence, and the need for compassionate support. This local impact underscores the importance of community-based organizations like OPALS 4 ALS, which exist to bring dignity, confidence, and moments of care to people living with ALS right here in our state.

ALS causes the gradual breakdown of motor neurons, leading to increasing muscle weakness and loss of physical function. Over time, people living with ALS lose the ability to:

• Walk

• Talk

• Eat

• Breathe independently

One of the earliest and most impactful losses is hand function, making everyday tasks—such as personal care and grooming—extremely difficult or impossible without assistance.

As physical abilities change, people living with ALS often experience a loss of independence and identity.

OPALS 4 ALS exists to help restore a sense of self through compassionate beauty and wellness services—offering moments of dignity, confidence, and care to those living with ALS.

Explore our Resources section for trusted organizations and helpful links offering information, support, and guidance for people living with ALS, caregivers, and loved ones.