Resources

Navigating an ALS diagnosis can feel overwhelming. The following organizations offer trusted information, support, advocacy, and community for people living with ALS, caregivers, and loved ones.

ALS Information & Support

The ALS Association
Education, care services, support groups, advocacy, and research funding.
https://www.als.org

I AM ALS
Patient-driven advocacy, community support, education, and policy initiatives.
https://www.iamals.org

Muscular Dystrophy Association (MDA)
Clinical care, support resources, and research for neuromuscular diseases, including ALS.
https://www.mda.org

Medical & Research Information

National Institute of Neurological Disorders and Stroke (NINDS)
Comprehensive medical information and research updates on ALS.
https://www.ninds.nih.gov

ALS Therapy Development Institute (ALS TDI)
Focused on ALS research, clinical trials, and drug development.
https://www.als.net

Centers for Disease Control and Prevention (CDC) – ALS
Epidemiology, statistics, and national ALS registry information.
https://www.cdc.gov/als

Community & Practical Support

Team Gleason
Provides technology, equipment, and resources to help people with ALS live more independently.
https://teamgleason.org

ALS Finding a Cure Foundation
Supports innovative ALS research and clinical trials.
https://www.alsfindingacure.org